Happy Tuesday friends! I am SO excited to share Eloise’s special day last week, as she had her first ice skating lesson! I couldn’t be more thrilled/nervous/elated/anxious for our girl’s new adventure on ice. For two years she’s been sitting on the bleachers with me while we watched Walter during his skate lessons with Perri,…
What Not to Say to a Parent of a Medically Complex Child (read: how to not sound like an a**hole)
It’s been exactly thirteen months since we’ve welcomed “Susan” into our home, our family life. Who is “Susan”? She’s Eloise’s apnea/bradycardia monitor, the “cable box” and “umbilical cord” Eloise has been attached to for over the past year. Yes, I named her monitor Susan. Naming her medical equipment has lightened the mood with Eloise and…
